An open letter to my students regarding masks in the classroom.<\/p>\n
Dear students,<\/p>\n
I want to talk for a minute about the University\u2019s recent announcement that they\u2019re lifting mask requirements in the classroom. I\u2019m going to ask you all to keep wearing them in my class. Not because I like masks\u2014I don\u2019t. They\u2019re hot, they\u2019re gross, and they\u2019re deeply uncomfortable to teach in. I totally hate them and I wish COVID would go away so that I could stop having to do it.<\/p>\n
Here\u2019s the reason. Fair warning, it\u2019s about to get really personal.<\/p>\n
I have a disability. It\u2019s an autoimmune condition called Ehlers Danlos Syndrome (EDS).<\/p>\n
I\u2019m not, technically speaking, immunocompromised<\/em>. Not in the traditional sense. I\u2019m not more likely to die of a cold or the flu than anybody else, and I\u2019m actually pretty good on the immune front. I\u2019ve had the flu maybe five times that I can remember in my adult life.<\/p>\n But I do have an autoimmune disease. What that means, for me, is that my body has trouble identifying what it should and should not react to. For example, it hates antibiotics and broccoli (and some other random things like adhesives, nail polish, and sunflower oil). One of those things is in the tetanus vaccine, although we don\u2019t know which<\/em> thing in the vaccine causes me to react to it.<\/p>\n It also means I metabolize things\u2026 oddly. For instance, Novocain does nothing for me at all while Benadryl, which puts most people to sleep, makes me hyper. Steroids give me muscle tremors, while a half of a Perocet causes full-on visual hallucinations.<\/p>\n Now I\u2019m lucky. I took the risk of getting vaccinated against COVID, and I didn\u2019t have an anaphylactic reaction to the Pfizer vaccine. So I\u2019ve been able to do that, but I know people with EDS who haven\u2019t. One couldn\u2019t walk for a week. One went blind for two days. One person had seizures.<\/p>\n The point is, EDS and its related immune responses are unpredictable and seemingly random, even to those of us who have it. That means that anything new\u2014a new disease, a new drug treatment, a new food, a new soap\u2026 a new anything<\/em> is playing roulette with our immune responses.<\/p>\n COVID, despite manifesting like a mild cold or the flu for most vaccinated people, is a vascular<\/em> illness. It impacts multiple systems.<\/p>\n EDS is a collagen disorder. You know what collagen makes up? Almost everything in the human body<\/em>, including the vascular system.<\/p>\n COVID has been known to cause heart conditions, strokes, lung damage, and so on. I already have a hole in my heart from EDS, and sometimes it gives me difficulty breathing. But COVID also triggers something called a cytokine storm as a result of immune system hyper-activation\u2014which is about the most terrifying thing you can say to someone with a wildly unpredictable immune system.<\/p>\n For most people, the vaccine seems to reasonably predict their symptoms of illness. Flu-like feelings, fever, aches, congestion, fatigue.<\/p>\n When I got the first vaccine and the booster, I had increased joint pain and fatigue, but because I always<\/em> have fluctuating joint pain and fatigue, I\u2019m actually not sure if that was just life that week or if it was a vaccine reaction.<\/p>\n The one thing I am sure was related to the vaccine (first shot and booster) was the thing that scares me a lot about the possibility of getting COVID. My arm\u2014the humerus\u2014spontaneously dislocated.<\/p>\n As in, it literally just slid out of my shoulder socket.<\/p>\n I was in the shower the first time and sitting quietly in the car the second time. And it just\u2026 slid out. And became mostly useless. I could still wiggle my fingers and bend my elbow, but I couldn\u2019t move the shoulder joint. It also ached quite a bit, which one would expect if one\u2019s arm is not actually attached.<\/p>\n I\u2019d seen discussions that suggest that the COVID vaccine might increase tissue laxity, so it wasn\u2019t a total<\/em> shock, but it wasn\u2019t pleasant and it was still a bit disturbing. In both cases, I was able to reset it and the tissues re-tightened after 36-48 hours, so my arm started behaving normally again.<\/p>\n If that\u2019s my vaccine reaction, what on earth would happen to me if I contract COVID? I know someone whose hips both dislocated and she lost the ability to walk with COVID on top of being hospitalized because she couldn\u2019t breathe as her ribs slid out of place and her lungs grew congested. (She recovered.)<\/p>\n That is not<\/em> just \u201clike a mild cold or the flu.\u201d That\u2019s \u201cmy body no longer functions like a human body in any capacity and appears to be made of jello.\u201d<\/p>\n So if you want to know why I\u2019m asking you to keep masking in my classroom, it\u2019s because I am required by my job to teach face-to-face<\/em> because I don\u2019t have a commonly recognized illness that leads to immunocompromization. I have something messed-up and rare that mostly lets me still do my job, but could literally cripple me<\/em> if I catch this disease.<\/p>\n So I\u2019m going to go one step farther and I\u2019m going to ask you to consider wearing masks in your other classes, too. Not because you have<\/em> to, but because not all of your faculty or your classmates or the staff at the University are going to feel comfortable talking publicly about their invisible disabilities or their kids\u2019 or spouses\u2019 or parents\u2019 illnesses or disabilities. To explain to you why I want you to mask means I have to tell you about my disability, and that\u2019s deeply personal. But I\u2019m doing it so that those other people don\u2019t have to.<\/p>\n What if the student who sits next to you has fibromyalgia? Or your professor has something like EDS or post-viral syndrome? What if the staff person who cleans your dorm bathroom has lupus? What if a faculty or staff member or student has a parent or spouse or child with cancer? You can\u2019t see<\/em> most of these conditions (although I wear finger ring-splints and a knee brace and often k-tape because of mine), but they are all at increased risk either of contracting COVID or, like me, of experiencing severe complications if<\/em> they contract COVID.<\/p>\n So yes, I\u2019m asking you to keep wearing your mask to make it easier and less stressful for people who are in the same weird, in-between space that I am so that they don\u2019t have to tell you all about their medical problems in order for you to be willing to wear a mask when indoors and unable to maintain distance.<\/p>\n I\u2019m asking you do to this, too, because the University won\u2019t, even though we\u2019ve asked them to. And because society at large won\u2019t, because people who are elderly or immunocompromised don\u2019t \u201ccount\u201d as full-fledged people. And because many people who wish you would<\/em> wear a mask feel too self-conscious to ask.<\/p>\n If we can go outside for a meeting, you can go mask-free around me. That\u2019s fine. But indoors, particularly in the tight spaces of a classroom or meeting room (like my office), please wear a mask.<\/p>\n Because even though COVID is mild for a lot of people, it\u2019s not likely to be that easy for me and for a lot of other people at this University. And we’d like to be able to keep working\/studying\/teaching with you.<\/p>\n Thanks.
\nDr. B.<\/p>\n","protected":false},"excerpt":{"rendered":"